Christena Estby

Christena is a wife, mom, and friend. She is a coffee lover, author, part-time Communications Assistant, homeschooling, adoptive, special needs mama of four. She is the wife of a Lutheran pastor and lives in a rural community (thankfully, close enough to a town with all the modern conveniences and just an hour from Chicago), enjoying the peace and quiet of her porch every chance she gets! Visit her website at Christena Writes.
It was today. I knew it was coming, but had no way of knowing this would be that day.

Backstory: We knew the diagnosis ten years ago when we adopted our son…Duchenne Muscular Dystrophy (DMD). He was 7 weeks old, and due to biology and family history of Duchenne, genetic testing had already been completed. Two years later, we adopted his little brother, knowing the likelihood (50% chance) of him having the same diagnosis. After genetic testing was completed, we received confirmation that he also has Duchenne.

The formal definition of DMD
It's so hard, but it's worth it.

Getting your late sleeper up on time, or interrupting your early riser's Sunday morning fun.

Asking your little ones to go get dressed to get out the door, when they really just want to stay in their pjs. "It's the weekend!"

It's so hard, but it’s worth it.

Taking your kids somewhere they don't necessarily want to be.

Expecting little ones to sit quietly for an hour
Caitlyn Michelle…It’s been 22 years since we met the baby girl we never got to know. We never saw her smile or heard her laugh. We never got to experience the little personality emerging in toddlerhood and through the elementary years. We never got to hear about future hopes and dreams or see her life’s goals come to fruition.

She came into this world too soon, her little body not yet ready to sustain life outside the safety of my womb. Caitlyn was our first—prayed for and rejoiced over—and the loss hit hard.

I wept and cried out to the Lord. There were so