Medical Diagnosis

My longest Messy Middle was a span of five years. When my son was about one year old, my husband and I began to hope and pray for another child. After two miscarriages in the span of six months, my body began to deteriorate. I collected a list of seemingly unconnected symptoms. Chronic fatigue. Brain fog. Muscle pain. Joint pain. Migraines. Blurred vision. Digestive distress. Painful Bloating. The list went on and on.

For three years, every three months on average, I was diagnosed with a new autoimmune disease or other condition. Hashimoto’s Disease. Celiac Disease. Ulcerative Colitis. C-Diff. Carbohydrate Malabsorption. Small Intestine Bacterial Overgrowth (SIBO). Histamine Intolerance. I had a growing
It was today. I knew it was coming, but had no way of knowing this would be that day.

Backstory: We knew the diagnosis ten years ago when we adopted our son…Duchenne Muscular Dystrophy (DMD). He was 7 weeks old, and due to biology and family history of Duchenne, genetic testing had already been completed. Two years later, we adopted his little brother, knowing the likelihood (50% chance) of him having the same diagnosis. After genetic testing was completed, we received confirmation that he also has Duchenne.

The formal definition of DMD